Susana Schnarndorf
Brazilian Paralympic Swimmer Susana Schnarndorf during a photo shoot in 2015 at Barra da Tijuca beach in Rio de Janeiro, Brazil.
Personal information
NationalityBrazilian
Born (1967-10-12) October 12, 1967
Porto Alegre, Rio Grande do Sul, Brazil
Years active1990–2019
Websitehttp://www.susanaschnarndorf.com.br
Sport
SportParalympic Swimming
DisabilityMultiple System Atrophy
Disability classS4, SB5, SM4
ClubGrêmio Náutico União
Medal record
Representing  Brazil
Paralympic Games
Silver medal – second place 2016 Rio Mixed 4×50 m freestyle 20 pts
World Championships
Silver medal – second place2023 Manchester200 m freestyle S3
Bronze medal – third place2023 Manchester50 m freestyle S3
Bronze medal – third place2023 Manchester100 m freestyle S3

Susana Schnarndorf Ribeiro (Porto Alegre, October 12, 1967) is a Brazilian Paralympic swimmer. In 2005, after a lengthy triathlon career, at the age of 37, Schnarndorf began to experience the first symptoms of a mysterious degenerative disease that was later diagnosed as multiple system atrophy (MSA). After a break from professional athletics, Schnarndorf returned to the sports world as a swimmer and is presently a member of the Brazilian Paralympic Swimming Team.[1][2]

Professional life

Susana began her swimming career at age of 11 in Porto Alegre, Rio Grande do Sul,[3] under the coaching of Mauri Fonseca.[4] She was a five-time Brazilian triathlon champion, competing in numerous races between 1993 and 1997.[5][6] Susana competed in the 1995 Pan American Games in Mar Del Plata, Argentina.[7] She moved to Rio de Janeiro and married Brazilian triathlete Alexandre Ribeiro,[8][9] with whom she participated in several international triathlon competitions.[10] Susana competed in a total of 13 WTC Ironman Triathlons,[6] winning six of them. Along with Alexandre Ribeiro, Susana had three children: Kaillani, Kaipo and Maila.[11] However, in 2005, just a few months after the birth of her daughter, the couple divorced.[12] Later that year, Schnarndorf began to feel the first symptoms of a mysterious degenerative disease that was later diagnosed as Multiple System Atrophy.[13][14]

Susana won a silver medal at the 2016 Summer Paralympic Games in Rio de Janeiro, representing her country of Brazil in the mixed 4x50m freestyle relay category.[1][15]

Multiple System Atrophy

It took several years before Schnarndorf received the correct diagnosis of Multiple System Atrophy.[1] Her condition worsened in 2008, when she lost coordination of the left side of her body. As a result of her progressive disability, Schnarndorf was unable to raise her three children alone, causing them to move into their father's home.[1][2] Multiple system atrophy (MSA) causes degeneration of multiple parts of the nervous system and results in muscle rigidity, incoordination, and a progressive decline in function of vital organs such as the lungs and heart.[16][17][18] Neurological damage is irreversible and permanent. The life expectancy varies from 5 to 10 years.[18]

Paralympic sport

Swimming at 2012 paralympics in London

After a period of profound depression, Schnarndorf joined the Brazilian Paralympic Swimming team in 2010.[6] Susana was Brazilian champion and record holder in the 50m freestyle, 100m freestyle, 400m freestyle, 100m breaststroke and 200m medley between 2010 and 2012.[6][7] In London 2012 Summer Paralympics, she was fourth place in the 100m breaststroke (SB7) and fifth in the 200m medley (SM7).[19] In 2013, she won the 100m freestyle world championship in the SB6 category[20] at the IPC Paralympic World Swimming Championships in Montreal, Canada.[21] Susana received the award for best female athlete, also in 2013, at the Paralympic Prize in Rio de Janeiro.[22][23] On September 9, 2016, Schnarndorf won the silver medal at the Rio 2016 Paralympic Games, in the 4x50m freestyle mixed relay, along with swimmers like Daniel Dias, Joana Silva and Clodoaldo Silva on September 9, 2016.[15]

Documentaries

In 2016, Schnarndorf was featured in the documentary '4All'[24] along with other well-known Brazilian paralympians.[25][26][27]

In 2018, the documentary A Day for Susana[28][29] directed by Giovanna Giovanini and Rodrigo Boecker, which portrayed Susana between the years 2014 and 2016, showing her family and health dramas during her journey to the Paralympic Games of 2016 in Rio de Janeiro.[30][31][32][33] The film had its world premiere during the 42nd São Paulo International Film Festival[34][35][36][37][38] and was officially selected for the 40th Havana Film Festival,[39][40] 43rd Atlanta Film Festival,[41] 17th Gdansk DocFilm Festival[42] in Poland and 13th This Human World[43] in Austria, where it received an honorable jury mention in the Up and Coming session.

Support for research and charity

In September 2017, a US non-governmental organisation, Defeat MSA[44] established the 'Susana Schnarndorf MSA Legacy Fund'[45] with an aim to raise money for medical education, scientific research and support for MSA patients, especially those suffering from the disease in South America.

References

  1. 1 2 3 4 BBC (September 8, 2016). ""Corpo está parando": nadadora luta contra doença rara – Olimpíadas – iG". Esporte (in Brazilian Portuguese). Retrieved November 8, 2017.
  2. 1 2 "Susana Schnarndorf – Portal Brasil 2016". www.brasil2016.gov.br (in Brazilian Portuguese). Retrieved November 8, 2017.
  3. ↑ "GaúchaZH". gauchazh.clicrbs.com.br (in Brazilian Portuguese). Retrieved November 8, 2017.
  4. ↑ "Pronta para um novo desafio – Renata Spallicci". Renata Spallicci (in Brazilian Portuguese). January 8, 2016. Retrieved November 8, 2017.
  5. ↑ "Natação Paralímpica: De olho em 2016, Vasco fecha com 2 campeões mundiais". SuperVasco (in Brazilian Portuguese). November 8, 2017. Retrieved November 8, 2017.
  6. 1 2 3 4 "Nadadora paralímpica brasileira corre contra o relógio". O Globo (in Brazilian Portuguese). July 21, 2016. Retrieved November 8, 2017.
  7. 1 2 "Campeã mundial paralímpica de natação se prepara para importante torneio em Berlim". O Globo (in Brazilian Portuguese). March 28, 2015. Retrieved November 8, 2017.
  8. ↑ "Alexandre Ribeiro: 20 anos do melhor tempo no Havaí | MundoTRI Triathlon". www.mundotri.com.br (in Brazilian Portuguese). Retrieved November 8, 2017.
  9. ↑ Totti, Iúri. "Nadadora paraolímpica é destaque da Travessia dos Fortes | Pulso – O Globo". Pulso – O Globo (in Brazilian Portuguese). Retrieved November 8, 2017.
  10. ↑ "Ex-triatleta consagrada agora brilha nas piscinas e maratonas aquáticas | Esporte Alternativo – O site de quem pratica esportes !". www.esportealternativo.com.br (in Brazilian Portuguese). Retrieved November 8, 2017.
  11. ↑ Esquenta! | Nadadora Susana Schnarndorf Ribeiro conta história de superação | Globo Play (in Brazilian Portuguese), retrieved November 8, 2017
  12. ↑ Esporte Espetacular | Mulheres Espetaculares: conheça a história surpreendente de Susana Schnarndorf | Globo Play (in Brazilian Portuguese), retrieved November 8, 2017
  13. ↑ Jogos Paralímpicos | Susana Schnarndorf, que já disputou Ironman, participa das Paralimpíadas | Globo Play (in Brazilian Portuguese), retrieved November 8, 2017
  14. ↑ "12 Things You May Not Have Known About This Year's Paralympic Athletes". BuzzFeed. Retrieved November 9, 2017.
  15. 1 2 "Susana Schnarndorf – Portal Brasil 2016". www.brasil2016.gov.br (in Brazilian Portuguese). Retrieved November 8, 2017.
  16. ↑ França, Adriele Ribeiro; Filho, Antônio de Souza Andrade (August 3, 2015). "ATROFIA DE MÚLTIPLOS E O SINAL DA CRUZ: UM RELATO DE CASO". Revista Brasileira de Neurologia e Psiquiatria. 19 (1).
  17. ↑ "Multiple System Atrophy: Background, Etiology and Pathophysiology, Epidemiology". July 19, 2017. {{cite journal}}: Cite journal requires |journal= (help)
  18. 1 2 "Multiple System Atrophy Fact Sheet | National Institute of Neurological Disorders and Stroke". www.ninds.nih.gov. Retrieved November 8, 2017.
  19. ↑ "'Mulher de ferro' ignora previsão de morte para vencer em Londres". globoesporte.com. Retrieved November 8, 2017.
  20. ↑ "Results: (Swimming) Women's 100m Breaststroke SB6 Final". www.paralympic.org. Retrieved November 8, 2017.
  21. ↑ "Best of Brazil heading to Glasgow 2015". www.paralympic.org. Retrieved November 9, 2017.
  22. ↑ "Daniel Dias e Susana Schnarndorf vencem Prêmio Paralímpicos 2013". globoesporte.com (in Brazilian Portuguese). Retrieved November 8, 2017.
  23. ↑ "Dias, Schnarndorf Ribeiro voted best para-athletes of 2013 in Brazil". www.paralympic.org. Retrieved November 9, 2017.
  24. ↑ "Filme PARATODOS". PARATODOS (in Brazilian Portuguese). Archived from the original on November 7, 2017. Retrieved November 8, 2017.
  25. ↑ "'Paratodos', documentário sobre atletas paralímpicos brasileiros, é disponibilizado na Netflix". HuffPost Brasil (in Brazilian Portuguese). August 26, 2016. Retrieved November 8, 2017.
  26. ↑ "Filme 'Paratodos' retrata a superação do paratleta brasileiro – Esportes – Estadão". Estadão (in Brazilian Portuguese). Retrieved November 8, 2017.
  27. ↑ Matheus. ""Paratodos" contra a lei da gravidade". CartaCapital (in Brazilian Portuguese). Retrieved November 8, 2017.
  28. ↑ "A Day For Susana". A Day For Susana. Retrieved March 21, 2019.
  29. ↑ A Day for Susana, retrieved March 21, 2019
  30. ↑ Rassy, Gabriela (October 17, 2018). "24 eventos para ser feliz em meio à loucura em São Paulo e no Rio". Hypeness (in Brazilian Portuguese). Retrieved March 21, 2019.
  31. ↑ "Diretores falam sobre realização do documentário 'Um Dia para Susana'". Esquina da Cultura. October 29, 2018. Retrieved March 21, 2019.
  32. ↑ ""Um dia para Susana", um filme para se ver! - Surto Olimpico". Retrieved March 21, 2019.
  33. ↑ "Recorde e estreia de filme: gaúcha tem fim de semana agitado no CT Paralímpico - Notícias - CPB". www.cpb.org.br. Retrieved March 21, 2019.
  34. ↑ "42ª Mostra Internacional de Cinema - Jornal - 42ª Mostra Internacional de Cinema divulga filmes selecionados". 42.mostra.org. Retrieved March 21, 2019.
  35. ↑ "Lenda do tênis, paratleta e craque bobão estão entre os destaques esportivos da Mostra". Guia Folha (in Brazilian Portuguese). October 19, 2018. Retrieved March 21, 2019.
  36. ↑ William Douglas (October 22, 2018), Filme Um Dia para Susana é lançado em São Paulo, retrieved March 21, 2019
  37. ↑ "Um Dia para Susana". Papo de Cinema (in Brazilian Portuguese). Retrieved March 21, 2019.
  38. ↑ "42ª Mostra Internacional de Cinema - Giovanna Giovanini e Rodrigo Boecker, diretores de "Um Dia Para Susana"". 42.mostra.org. Retrieved March 21, 2019.
  39. ↑ "Um dia para Susana". Festival Internacional del Nuevo Cine Latinoamericano (in European Spanish). Retrieved March 21, 2019.
  40. ↑ Cinevitor (December 14, 2018). "40º Festival de Havana: conheça os vencedores; filmes brasileiros são premiados". CINEVITOR (in Brazilian Portuguese). Retrieved March 21, 2019.
  41. ↑ "43rd Annual Atlanta Film Festival Announces Complete Lineup". Atlanta Film Festival. Retrieved March 21, 2019.
  42. ↑ "Gdansk DocFilm Festival". www.facebook.com. Retrieved May 24, 2019.
  43. ↑ "this human world". www.facebook.com. Retrieved March 21, 2019.
  44. ↑ "Defeat MSA – #kickmsa #defeatmsa #defeatmsafdn #multiplesystematrophy #multiplesystemsatrophy #msa". defeatmsa.org. Retrieved November 9, 2017.
  45. ↑ "Six New Defeat MSA Legacy Grants Announced – Defeat MSA". defeatmsa.org. Retrieved November 9, 2017.
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